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Choosing between spending time with a terminally ill loved one or fighting for them, their legacy, or an impossible cure.

When Declan came home from the hospital, he needed round-the-clock care—24 hours a day, every day. Here’s the math people don’t want to do: a full-time worker puts in about 1,960 hours a year (40 hours/week, minus vacation and holidays). A year has 8,760 hours. That means caring for Declan required 4.47 full-time employees , every year. Even in Minnesota’s highest-acuity cases, coverage is essentially capped—typically no more than 20 hours per day . So families are expected t

ADA Compliance Is the Floor, Not the Ceiling I’m constantly amazed by the lack of accommodations for disabled people everywhere I go. I think about my own lack of awareness before I had Declan, and I get how people who’ve never needed to think about accessibility don’t understand the problem. Something that took me a long time to understand is that ADA compliance is basically the bare minimum . A building can be technically “compliant,” but the ramp or accessible entrance can

How can we all be more inclusive